Self-Advocates

These resources are all designed for self-advocates. This page provides access for all self-advocate resources across all AID in PA projects.

For each project, content is broken down into 3 categories: Quick Bites, Next Steps and Deeper Dive.

Quick Bites: These resources provide a general overview of the topic. If you only have a few minutes to look at information, start with the “quick bites”. This is where you’ll find the most important resources.

Next Steps: If you have more time to spend take the “next step” into these resources where you can find more detailed content on the topic.

Deeper Dive: Looking to know even more? Take a “deep dive” into all of the content that has been developed on the topic to date.

COVID-19 Resources

These resources focus on the COVID-19 pandemic and include information about a wide range of topics including physical health, mental health and wellbeing, accessing services, education during the pandemic, community engagement and more.

Quick Bites

COVID-19 Vaccine Information

These resources are designed to help answer questions about the COVID-19 vaccine. There is information on Emergency Use Authorization and social stories on getting the vaccine and what to expect after you receive a vaccine. These resources were developed in collaboration with the PA Department of Health.

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Video: New Rules in Familiar Places

This video provides information for self-advocates on changes to expect when going back into the community, and tips on how to manage those changes.

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Video: Hand Washing Tips and Tools

These videos provide tips and tools for when and how to properly wash hands.

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Video: Communication During a Pandemic

This presentation provides information about the communication method, and the importance of communicating during difficult times.

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Video: If People Don’t Wear Masks

This video provides do's and don'ts if you see someone not wearing a mask while out in public.

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Next Steps

Video: Back into the Community

This video provides self-advocates with tips and information on finding good information about COVID-19 and guidelines for going back into the community.

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Video: Returning to the Community for Self-Advocates

This webinar shares interviews with self-advocates offering their perspectives on reentering communities in this "new normal."

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Video: Being Flexible and Starting New Routines

This presentation, for self-advocates, provides tips and suggestions on being flexible during times of change and learning how to start new routines.

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Video: Managing Stress and Emotions

This video provides information for self-advocates on how to manage stress and difficult emotions they may be having.

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Video: Well Being in Isolation

This video provides information on how to maintain your mental health and overall well being while socially distancing and being isolated from friends and family due to COVID-19.

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Video: Maintaining Mental Health During a Pandemic

This video provides information about COVID-19 fatigue and how to maintain your mental health during the ongoing global pandemic.

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Deeper Dive

Video: Finding Gratitude

This video provides information about gratitude, and ways to practice it to improve your well being.

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Video: Self-Advocate Perspectives on Returning to the Community

This video provides insights from self-advocates about going back into the community during the COVID-19 pandemic

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Video: Understanding Post-Traumatic Stress Disorder

This video developed by Western Region ASERT, provides self-advocates with information about Post-Traumatic Stress and how to handle difficult emotions.

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Video: Bereavement During a Pandemic

This video provides advice on how to manage the grief associated with bereavement during a pandemic. There are two videos included in this resource, one for the general community and one for self-advocates. There is also information on how to best support individuals during this time.

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Video: Reopening After COVID-19

This video reviews the Red, Yellow and Green phases of Pennsylvania counties, what to expect in each and how these keep us safe and healthy.

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Video: Dealing with Negative Thoughts and Maintaining Control

This video for self-advocates provides information on how to deal with negative thoughts that may come up as a result of COVID-19 and how to maintain a sense of control.

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HEART: Healthy sexuality, Education, Awareness, and Relationship Training Resources

These resources focus on reducing risk for experiencing sexual abuse or assault for individuals with ID/A. Content is broken into three important areas: risk reduction, healthy relationships, and healthy sexuality.

These resources are still in development. Check back often to see when resources are available. Until then, check out these websites:

ASERT: Be Safe Resources

Pennsylvania Coalition Against Rape

RAINN

 

Emergency Preparedness Resources

These resources focus on how to prepare individuals with ID/A for emergency situations, particularly what to know and do if they need to stay in an emergency shelter. Additional resources focus on providing shelter staff and emergency support workers to effectively support individuals with ID/A.

Please check back often as resources are being developed and added on a regular basis!

Human Trafficking

One of the biggest risk factors for human trafficking is a lack of permanent housing or homelessness. Living in a shelter because of an emergency situation such as fire, flood, or other natural disaster puts people at risk of being exploited. Additionally, having an intellectual disability or autism also puts individuals at greater risk of being trafficked. Because of these risk factors, the Office of Developmental Programs, ASERT, Office of Children, Family and Youth, experts in human trafficking, and other statewide agencies have collaborated on resources to bring awareness to human trafficking, prevention, and intervention strategies.

Human Trafficking: What you need to know

These resources were designed for individuals with autism and intellectual disabilities to learn about human trafficking. Resources include information on what it is, signs, prevention, and what to do if you suspect human trafficking.

Resources

Human Trafficking Social Stories

This series of social stories provides visual guides on what human trafficking is and how to help prevent it.

Resources

Additional Resources

For additional information, check out these websites:

ReadyPA.gov

Inclusive Preparedess Resources: Red Cross

Ready.gov

FEMA: Office of Disability Integration and Coordination

 

Wellness Resources

These resources will cover a wide range of health and wellness topics, including physical and mental health. These initial resources were developed by ASERT in collaboration with psychologists and emergency room physicians and focuses on preparing for emergency health situations as well as providing resources to emergency medical personnel.

Emergency Medical Care

When to Go to the Emergency Department and What to Expect

This resource is for parents/caregivers and self-advocates to provide information about when to go to the Emergency Department and what to expect when you get there.

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Calling 911

This resources for parents/caregivers and self-advocates provides information about what to expect when you call 911.

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Educating the Emergency Department

This resource was developed for parents/caregivers and self-advocates on educating your local emergency department about being on the spectrum.

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Emergency Responder Notification Forms

Many counties throughout Pennsylvania have created a form to notify emergency responders that individuals on the autism spectrum, or with other diagnoses or needs, live at a particular address. It is important for emergency responders to be made aware of who lives in the home, any sensitivities than the autistic individual may have, and the types of behavior the responders may witness so they are better prepared to safely handle a potential emergency situation.

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